There is a wealth of knowledge available on the internet. Below are some recommended sites.
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New Zealand Organisation for Rare Disorders
The New Zealand Organisation for Rare Disorders (NZORD) provides New Zealand's central starting point for information about rare disorders.
NZORD can refer parents/caregivers to support groups for specific metabolic disorders.
Cystic Fibrosis Association of New Zealand
The Cystic Fibrosis Association of New Zealand website provides information about Cystic Fibrosis.
The March of Dimes website contains information about pregnancy, birth and the health of babies. Because it is an overseas site, not all information will be relevant to New Zealand. For example, the site mentions some disorders that are not currently screened for in New Zealand.
The Newborn Screening Info website provides fact sheets on the metabolic disorders screened in the New Zealand programme. It includes descriptions of each disorder and how they can be detected and treated.