Useful links

There is a wealth of knowledge available on the internet. Below are some recommended sites.

CCS Disability Action
To strengthen communities and provide support so people with disabilities are included in the life of their family and in their community.

Firstport is New Zealand's disability information website, for disabled people, their families, whānau and caregivers, health professionals and disability information providers.

A website about living with intellectual disability in New Zealand. IHC New Zealand Inc will advocate for the rights, inclusion and welfare of all people with an intellectual disability and support them to live satisfying lives in the community.

Kiwi Families
A website centered on practical parenting advice for parents in New Zealand.

New Zealand Down Syndrome Association
The New Zealand Down Syndrome Association is a family/ whānau driven organisation for people whose lives have been changed by Down syndrome.

New Zealand Federation of Disability Information Centre
The Federation nationally promotes and supports the local provision of generic disability information and referral services that are community integrated, needs driven and focused on achieving the aims of the New Zealand Disability Strategy Document.

New Zealand Organisation for Rare Disorders
Providing information for patients, their family and professionals, and building partnerships to accelerate research towards control and cure of rare disorders.

Disability Connect
Supporting parents and families of disabled children and young people.

Toi te Taiao: the Bioethics Council. 2008.  Who Gets Born?  A report on the cultural, ethical and spiritual aspects of pre-birth testing
During 2007 and early 2008, Toi te Taiao: the Bioethics Council talked with New Zealanders to find out what they thought about pre-birth testing.  What they heard, together with the results of the Council’s own research and deliberations, are presented in this report.  The report preceded the quality improvements to antenatal screening for Down syndrome and other conditions and provided the ethical considerations prior to the rollout of the new antenatal screening options in 2009.

Page last updated: 24 November 2014