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Recommended links

New Zealand Organisation for Rare Disorders

The New Zealand Organisation for Rare Disorders (NZORD) provides New Zealand's central starting point for information about rare disorders.

Cystic Fibrosis Association of New Zealand

The Cystic Fibrosis Association of New Zealand website provides infomation about Cystic Fibrosis.

March of Dimes

The March of Dimes website contains information about pregnancy, birth and the health of babies.  Because it is an overseas site, not all information will be relevant to New Zealand.  For example, the site mentions some conditions that are not currently screened for in New Zealand.

Newborn Screening Info

The Newborn Screening Info website provides fact sheets on the metabolic disorders screened in the New Zealand programme.  It includes descriptions of each disorder and how they can be detected and treated.