The NCSP-Register is a computer system which holds the details of women enrolled in the programme as well as details of smear takers, specialists and laboratories.

Women are entitled to get access to the information the NCSP-Register holds on them.

If you change your name or address please let your smear taker and the National Cervical Screening Programme staff know. To contact the National Cervical Screening Programme, freephone 0800 729 729.

What information is collected?

The following information is collected on women enrolled in the programme and stored on the NCSP-Register:

• personal details to correctly identify women
• cervical smear test and biopsy/histology results to help decide when the next smear is due or follow up is required
• contact details and relevant clinical information so the programme can write and remind the woman she is overdue to have a smear test or she requires further follow up
• ethnicity details, which are used to plan better services.

The National Screening Unit of the Ministry of Health in Wellington holds this information securely. Only authorised personnel have access to information stored on the NCSP-Register. It is protected by the Health Act 1956, as amended by Part 4A and can only be provided outside the programme to your health practitioner(s) and/or evaluators or a review committee appointed by the Minister of Health to check how well the programme is working.

Confidentiality

The National Screening Unit of the Ministry of Health holds information collected as part of the National Cervical Screening Programme securely.

Only authorised people have access to information stored on the NCSP-Register. It is protected by the Health (NCSP) Amendment Act and can only be provided outside the programme to your health practitioner(s) and/or programme reviewers who check to see how well the programme is working.

National Kaitiaki Group

The National Kaitiaki Group was set up by law to protect the use of Māori women's summary information (information that will not personally identify anyone) on the NCSP-Register.

Pacific Women's Data Advisory Group

The Pacific Women's Data Advisory Group advises on the use of Pacific women's summary information (information that will not personally identify anyone) on the NCSP-Register.